It has been a while since I have updated things. Addisyn is 10 months now and has turned into a hefty little thing. She is now over 20 lbs and has caught up to most kids her size. We are in the process of getting her qualified for DDD and all that stuff because the EI people don't think she will be caught up by age 3. Whatever, is what I say. She is rolling and practicing her sitting. She can't quite sit unnasisted, but she is getting there. She also has 2 teeth and is enjoying being a little kid.
Addisyn had a bronch last week, and it went alright, but her airway is still not ready for her to be decannulated. I really don't mind the trach too much, but I am tired of telling the same story over and over again. I am going to to what another trach mom did and make buisiness cards with her blog on it and just pass it out. I feel like a broken record these days and it seems like everyone is disapointed about the trach but me. Maybe they just feel sorry for us, or her. Now, of course if I had to choose life with the trach as opposed to without, I definitely would choose the latter. However the trach is part out our life and will be for quite some time. As for the the question of the day, or the question of every day, the answer is that the trach will be there indefinitely. It will eventually come out sometime, but looking that far into the future can be just too overwhelming for me and I have learned to focus on the now rather than the future. If I spend too much time worrying about tomorrow, then I will spend the rest of my life regretting missing out on her early years because I wished them away.
As for me, I start school on Monday to continue my education so I can finally earn my nursing degree. I would like to be a NICU nurse, not only to give back to whose who have done so much for us, but also because little babies are so innocent. You are not dealing with some drunk who hit a van full of kids on their way to church or having to patch up any of the other rejects of society. Neonates are completely innocent with their whole lives ahead of them. They also can't tell you no when you have to give them a needle. I cringe at the sound od screaming little children in the children's ER.
Here are some newer pics of Addy. She is pretty cute, isn't she?
Addisyn had a bronch last week, and it went alright, but her airway is still not ready for her to be decannulated. I really don't mind the trach too much, but I am tired of telling the same story over and over again. I am going to to what another trach mom did and make buisiness cards with her blog on it and just pass it out. I feel like a broken record these days and it seems like everyone is disapointed about the trach but me. Maybe they just feel sorry for us, or her. Now, of course if I had to choose life with the trach as opposed to without, I definitely would choose the latter. However the trach is part out our life and will be for quite some time. As for the the question of the day, or the question of every day, the answer is that the trach will be there indefinitely. It will eventually come out sometime, but looking that far into the future can be just too overwhelming for me and I have learned to focus on the now rather than the future. If I spend too much time worrying about tomorrow, then I will spend the rest of my life regretting missing out on her early years because I wished them away.
As for me, I start school on Monday to continue my education so I can finally earn my nursing degree. I would like to be a NICU nurse, not only to give back to whose who have done so much for us, but also because little babies are so innocent. You are not dealing with some drunk who hit a van full of kids on their way to church or having to patch up any of the other rejects of society. Neonates are completely innocent with their whole lives ahead of them. They also can't tell you no when you have to give them a needle. I cringe at the sound od screaming little children in the children's ER.
Here are some newer pics of Addy. She is pretty cute, isn't she?
2 comments:
She is awful cute! :D
She is absolutely beautiful!!
Congratulations on going back to school.
Best,
Lisa
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