Things have been so busy around here. My semester is about over, the holidays are rapidly aproaching and things are moving so fast that my head is spinning. I hate curve balls, but when you have a child like Addy, you learn to take them. I can't believe how far we have come in the past year. Addisyn is 13 months now and 26 lbs! She is such a happy kid. By looking at her today, you would never know that she was ever so tiny.
So, we got some "news" about a week ago at her ENT appointment. Her ENT wants to do another broncoscopy- she wasn't supposed to have on until february. if all looks well he wants to cap and decannulate her- for you lay people, that means pulling out the trach. I was shocked to hear this as after her last bronch, he said it would be a while. Her pulmonologist is positive and thinks she can do this. I, however am not so sure. Maybe it is because I have become accustomed to believing that the trach would not come out until the spring, or even a year later. I had just accepted the trach as a long term part of our lives and that she would have it "indefinitely". I can't imagine life without it. I just can't grasp a reality of the trach not being a part of our lives- or maybe I just don't want to just yet. It has become a security blanket for me. I know her like the back of my hand. With the trach gone, I will be entering into a whole new world with her. Her bronch is scheduled for Dec 7, however she hasn't been feeling well for a couple of days so if she doesn't return to 100% well soon, it will be postponed. So far, she is rapidly recovering from her illness, so I am optimistic that she will be fine. Only Addy can tell us what she is ready for.
Friday, November 27, 2009
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