The good, the bad

About two weeks after Addy was decannulated, Chuck lost his job. This was major since he carried Addy's insurance, not to mention the loss of income. Luckily, my former employer allowed me to come back as a temp. I didn't want to go. I am not ready to me away from Addy yet. I did enjoy the social interaction, but my heart was at home with Addy. About 2 weeks after I went back to work, Chuck received a really good offer from an IT Consulting firm. He is beyond happy with his new gig and we are happy for him. The good news is that Addy now has long term care, which makes no sense, but I will take it! My semester is over. I got 3 A's and a B. I am pretty satisified. Hopefully in the next few weeks, I will apply to the nursing program. I am pretty stoked.

The kids are out of school and we have adjusted to being a trachless family again. Her equipment is in the garage with the exception of her pulse-ox. We are still using it at her ENT's request, but hope to stop using it by the time she sees him again next month. Addy is talking a little. She calls the dog "Da" and babbles a bit. I am working on getting her into speech therapy. She flunked her last swallow study, but I think we did it too soon after her decannulation.

The Holidays are over and a new year

I really need to get better at keeping up on here. Addisyn had her bronch on Dec 7. I didn't go as planned and I was bummed about it for a while. However, I am now over it. Addisyn's bronch showed significant malacia in the lower airway. It is basically unchanged from her first bronch in the NICU. Because of this, she is scheduled for an MRI and will have that tomorrow. If there is something pressing on her airway, it will require a major surgery called an aortapexy to fix. However, tracheomalacia typically resolves by 2 years old and is its worse at around 18 months. All of this information I found on the internet, so I am not sure why her Dr is jumping the gun so soon and ordering the MRI. I am fine with it though, because if there is something that needs correcting, I would rather know sooner than later.

Aside from everything else, the Holidays came and went and everything went pretty well. Addy stayed healthy with the exception of a cold. It was wonderful being able to celebrate the holidays as a family instead of having one of our children in the hospital and the others at home. Addisyn has come so far in the past year and never fails to make us laugh. She is truely a crazy, funny little kid.